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Our Research Catalogue contains grants and outputs data up to the end of April 2014. Records will no longer be updated after this date.

Bioethics, law and the regulation of biotechnologies in the European Union: the case of umbilical cord stem cell banking

Grant reference: RES-000-22-1792

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Journal article details

Mapping the role of official bioethics advice in the governance of biotechnologies in the EU : the European Group on Ethics’ Opinion on commercial cord blood banking
In the early 1990s, the EU's proposed bioeconomic agenda provoked ethical concerns among its citizenry. In response to the political impasse between economic and ethical imperatives, as well as the perceived lack of democratic legitimacy, the EU established an expert bioethics advisory body, known as the European Group on Ethics in Science and New Technologies (EGE). Situated at the boundary between law, bioethics and economic policy, the EGE plays an ambiguous role in the governance of biotechnologies in the EU. To elucidate the nature of its role and influence, this paper considers the EGE as an integral element of a broader web of governance spanning EU and Member State institutions. Using as a case study the emerging controversy surrounding commercial cord blood banking, we explore whether the EGE and its ethical opinions on this matter have contributed to the democratic legitimacy of the EU.
10.1093/scipol/scs003
English

Primary contributor

Author Alison Mohr

Additional contributors

Co-author Helen Busby
Co-author Tamara Hervey
Contributor Robert Dingwall

Additional details

39
1
Yes
0302-3427
Open access agreement in place with publisher.
Oxford University Press
17 February 2012
12
105-117
Oxford
Post-print
Science and public policy

Files

105.full.pdf (.pdf / 228kb)

Cite this outcome

Harvard

Mohr, Alison et al (2012) Mapping the role of official bioethics advice in the governance of biotechnologies in the EU : the European Group on Ethics’ Opinion on commercial cord blood banking. Science and public policy. 39 (1), pp. 105-117 Oxford: Oxford University Press.

Vancouver

Mohr Alison et al. Mapping the role of official bioethics advice in the governance of biotechnologies in the EU : the European Group on Ethics’ Opinion on commercial cord blood banking. Science and public policy 2012; 39 (1): 105-117.