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Our Research Catalogue contains grants and outputs data up to the end of April 2014. Records will no longer be updated after this date.

LIVING WITH SICKLE CELL OR BETA THALASSAEMIA TRAIT: IMPLICATIONS FOR IDENTITY AND SOCIAL LIFE

Grant reference: RES-062-23-3225

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Seminar/workshop details

Why sickle cell and thalassaemia are really health and not ethnic issues
The presentation was given as part of community led, conference – Community Spirit in Crisis? Creating the potential for positive change - held in Cardiff and organised by Friends of Cardiff Sickle Cell and Thalassaemia. The research team have been given advice to the local community for several years, as a consequence of the local Trust’s decision to re-organise service delivery. The conference was part of a broader strategy to engage communities in the decision making process. About sixty people attended the day and the audience included members of the local community, including those directly affected by the two conditions; health care professionals and commissioners; and representatives from local voluntary and community organisations.
English

Primary contributor

Author Dyson Simon

Additional details

24 November 2012
Butetown Health Centre, Butetown, Cardiff, Wales
24 November 2012