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LIVING WITH SICKLE CELL OR BETA THALASSAEMIA TRAIT: IMPLICATIONS FOR IDENTITY AND SOCIAL LIFE

Grant reference: RES-062-23-3225

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Conference paper/presentation details

Screening for sickle cell and thalassaemia : what does the evidence tell us
The presentation was given as part of community led, conference – Community Spirit in Crisis? Creating the potential for positive change - held in Cardiff and organised by Friends of Cardiff Sickle Cell and Thalassaemia. The research team have been given advice to the local community for several years, as a consequence of the local Trust’s decision to re-organise service delivery. The conference was part of a broader strategy to engage communities in the decision making process. About sixty people attended the day and the audience included members of the local community, including those directly affected by the two conditions; health care professionals and commissioners; and representatives from local voluntary and community organisations.
English

Primary contributor

Author Karl Atkin

Additional details

24 November 2012
Community spirit in crisis? : creating the potential for positive change
Cardiff
24 November 2012

Files

Atkin_screening2.pdf (.pdf / 276kb)