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Our Research Catalogue contains grants and outputs data up until April/May 2014.

LIVING WITH SICKLE CELL OR BETA THALASSAEMIA TRAIT: IMPLICATIONS FOR IDENTITY AND SOCIAL LIFE

Grant reference: RES-062-23-3225

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Conference paper/presentation details

The NHS sickle cell and thalassaemia screening programme : rhetoric and realities of 'reproductive choice'
Paper presented at an international conference based on a review of goals and outcomes of the twin screening policies for sickle cell and thalassaemia in the UK, resulting in identifying thousands of 'healthy carriers' each year. The paper engaged with the goals of identifying 'at risk pregnancies' and the rhetoric of 'informed choice' underpinning these policies, within the context of wider sociological and anthropological literature on genetic information, risk and responsibility shared within family and kinship units. In looking at the continuum of antenatal testing, prenatal diagnosis, pre-conceptual testing and pre-implantation diagnosis, the paper teased out the boundaries between genetic responsibility and new eugenics in this new model of public health and governance, where the state is not overtly coercive but operates through promoting technologies of genetic selection and non-coercive choice.
English

Primary contributor

Speaker Sangeeta Chattoo

Additional contributors

Speaker K. Atkin

Additional details

05 September 2012
British Sociological Association (BSA) Medical Sociology Group annual conference
Leicester
44th
05 September 2012

Files

Chattoo_the NHS.pdf (.pdf / 189kb)

Cite this outcome

Harvard

Chattoo, Sangeeta and Atkin, K The NHS sickle cell and thalassaemia screening programme : rhetoric and realities of 'reproductive choice'. British Sociological Association (BSA) Medical Sociology Group annual conference, 44th, Leicester, 2012.

Vancouver

Chattoo Sangeeta and Atkin K. The NHS sickle cell and thalassaemia screening programme : rhetoric and realities of 'reproductive choice'. British Sociological Association (BSA) Medical Sociology Group annual conference, 44th, Leicester, 2012.